The University Hospital La Paz, in Madrid, Spain, will host the Phelan-McDermid Syndrome International Conference‚ Europe on 21-23 September 2018, organized by the Spanish Phelan-McDermid Syndrome Association.
The aim of the conference is to present the latest advances in research on Phelan-McDermid syndrome. It will be an opportunity to exchange opinions and learn first-hand about the problems and constraints faced by those affected and their families.
The conference is aimed at families and PMS associations in Europe and other countries and is open to scientists, health professionals and anyone interested in learning and updating their knowledge about the syndrome.
- Scientific Conference: the first day is aimed at the scientific and medical community, health professionals and the pharmaceutical industry; as a forum for discussion, updating and dissemination of the latest progress in research and knowledge about Phelan-McDermid syndrome. In addition, we want to give voice to all those national and foreign students and researchers who are working on Phelan-McDermid syndrome or the SHANK3 gene. For this, there will be a space for the presentation of posters during the conference.
- Medical Conferences: the second and third days are focused on family members, associations, therapists and all people interested in the syndrome; as a meeting point and update of the most important issues that affect the daily life of patients affected with PMS and other related disorders.
We believe it is extremely important to take advantage of this meeting to create a climate of collaboration among research teams, to make progress in improving the quality of life of those affected and their families.
On this website you can find the program, the registration form, and information regarding accommodation, transportation and other logistical details.